by Jenn | Sep 30, 2026
Click here to learn more Click HERE to RSVP! Click here to learn more about The Patients Union, join for free today and be a founding member of our national...
by Jenn | Sep 25, 2026
I swear I mail in my claims for reimbursement and they disappear when they hit Humana’s P.O. Box in Kentucky. Another reason to hate that state. I swear my claims endup with santa’s letters. How do you fight a claim they refuse to admit exists no matter...
by Jenn | Sep 21, 2026
by Jenn | Sep 20, 2026
Jenn C. from Manchester, NH, started experiencing “snow” in her vision. After visiting her eye doctor, she discovered the medication she was taking to prevent a recurrence of breast cancer wasn’t being processed by her body correctly. The result was...
by Jenn | Sep 19, 2026
Traveling to Washington, D.C. with Popular Democracy and Ali, a fellow CRPS Warrior, was both an inspiring privilege and a powerful physical reminder of why we do this work. As a rare disease advocate, former state representative, and disabled person, traveling takes...
by Jenn | Aug 24, 2026
Greetings, I do not enjoy writing this, but the truth must be said, and I will not be painted as some villain. I did have to remove RAD from an event for very valid, sad reasons. As a result, ending my support as well. I invited RAD to sponsor an event; that was all I...
by Jenn | Aug 19, 2026
If you want to know what we are up against and why what we do is so important, just review these articles: UnitedHealth joins Amazon among the world’s revenue giants 31 top healthcare organizations on the Fortune Global 500 UnitedHealthcare is the 4th-largest company...
by Jenn | Aug 18, 2026
Too often, navigating healthcare can feel isolating. Whether you’ve fought with an insurance company, struggled to afford care, advocated for a loved one, worked within the healthcare system, managed a disability or chronic illness, or simply experienced how...
by Jenn | Aug 9, 2026
We’re building a patients’ union to bring people together, share experiences, support one another, and advocate for affordable, accessible, and respectful care. If you’ve faced medical debt, denied treatment, long waits, poor communication, or barriers to care, your...
by Jenn | Jul 26, 2026
I do what I can and often I push past where I should. But that’s my choice. I’ve always thought I can handle anything I put my mind too. But that’s not totally true. It takes accommodations to be able to fully participate in most anything. Today we...
