Reflections

I have been in a flare for a few days now, even having to use the emergency medications kit and oxygen. One would think struggling to use the walker after having some weeks of being able to walk with a cane, depressing. So why the heck am I so happy laying here in bed with […]

My life with RSD/CRPS A Flare

Now about three weeks out from infusion, it appears to have worn off or the plate is to great. Makes breathing an issue. Hope for a cure #RSD #CRPS

Four

Age of four world should be galore sky is dark hands are free good G-d help me ~JRC -19

Saving one life

Dr Richardson at Concord Hospital, Dr. Flannagen and Medic/RN Kevin Drew, from Catholic Medical Center , Dr. Jorgensen and his nurse Kate RN, at Seacoast Pain Institute I believe saved my life. I was ready to end treatments prior to the infusions, after two rounds of cancer, dangerous spinal surgery with a displaced spinal cord, […]

Reflex Sympathetic Dystrophy Can Take

RSD may take my walk but it will not take my talk. I will be vocal I will be bold. I will never give in and i am never too old. RSD may take my hair but I don’t care. I will keep my head up high. Hair is nothing between you and I. I […]

Video blog #13 ketamine infusion first two weeks / 2wk infusions #CRPS #pmps

having now completed the first two weeks of daily infusions and a follow-up infusion after 2 weeks of rest I can now give you a report on how I am feeling and how the infusion went this completes my trial. Of the ketamine infusion experimental treatment. I will now start monthly treatments in 4 weeks […]

Video blog# 12 Ketamine Infusion#9 #CRPS #PMPS

Infusion number 9 of 10 for the loading dose treatment of complex regional pain syndrome also known as reflex sympathetic dystrophy and post-mastectomy pain syndrome. loading doses consists of 10 infusions that take place over a course of two weeks. Over the first few days the dose is slowly raised then there will be two […]

Video blog number 11 ketamine treatment number 8 of the loading doses

In my journey to find treatments and hopefully someday a cure for complex regional pain syndrome type 2 and post-mastectomy pain syndrome I am now doing what’s considered experimental treatment with ketamine infusions blogging through the loading doses helping others I hope by sharing information with one another in the desperate search to reduce our […]

Video blog #10 Ketamine Infusion #7 #CRPS #PMPS

Dealing with breast cancer is never easy adding a tram flap reconstruction that didn’t quite go so well causing post-mastectomy pain syndrome and subsequently developing complex regional pain syndrome type 2 is never an easy road. I offer this to anyone else out there who’s suffering and looking for what it’s like to actually go […]