A Statement Regarding Kowalski v Johns Hopkins ACH

There’s nothing anyone can say about the horrors of what has been revealed in the court case of Kowalski v Johns Hopkins All Children’s Hospital. I live in New Hampshire and I’m seriously shocked at the attitudes and backwoods medicine in Florida. I...

Care Over Cost National Rally 2023

#CareOverCost National Campaign #CRPS #RSD Infusions and Medical Care. Hon. Jenn Coffey, NREMTI Ret. Complex Regional Pain Syndrome / Small Fiber Neuropathy Battle for access to life saving treatments. #RSD #Raredisease #Smallfiberneuropathy...

Recommended Reading – Raising Male Breast Cancer Awareness

The Pink Unicorns Of Male Breast Cancer Alan Herbert is a West London born, ex forces, motorcycle riding, all action grandfather who now lives in The Netherlands with his family. In 2012, he was diagnosed with breast cancer. Alan vividly describes his battle with...

So I did a thing ~ Wish me luck!

I entered the Rare Artist Contest. Submissions closed today. “It’s Complicated” Acrylic on Stretch Canvas Artist Statement: “It’s Complicated” being rare. On the surface, I “appear” fine. There have been those who say,...

A Keyword Gave Me an Instant Denial

August 28, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. On the occasion of marking Medicare’s 58th birthday, I teamed up with an organization called “Be A Hero.” An organization that believes we should be able to access care without selling our lives away....

Everyone Deserves Access to the Best

July 31, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. An activist’s dream. That’s how I would describe the trip back to Washington D.C. for the “People’s Action Organizing Revival: a call to revitalize the movement for social justice by strengthening...

Honored to speak at the “Protect Our Care” Rally

Monday, July 31 at 11 AM – Veterans Memorial Park, 723 Elm Street, Manchester, NH Care Force One Rolled into Manchester as it Travels Across 16+ States, Making Over 30 Stops and Covering Nearly 8,000 Miles Protect Our Care’s “Lower Costs, Better Care” Bus Tour...

We Will Not Stop Fighting

July 3, 2023 Written by Hon. Jenn Coffey for the RSDSA blog. I want to share with you the work that I am doing and ask you for your help. People with CRPS know all too well the pain of being denied access to medical treatments and medications that could improve our...