A Call To Action! Stop Health Insurers’ Most Evil Scheme!

From A More Perfect Union A Call To Action! Stop Health Insurers’ Most Evil Scheme Why are the major health insurance companies — including Humana, Kaiser, United Healthcare, Cigna, and Blue Cross Blue Shield — denying coverage of obviously necessary...

In Memory of Ady Barkan

From MSNBC a Tribute to Ady. Healthcare activist Ady Barkan died at the age of 39 after being diagnosed with ALS in 2016. We pay tribute to a man who made it his mission to improve the American healthcare system. Nov. 3, 2023 Be A Hero takes on the impossible fights....

Deny Delay to Death

In April 2023, we launched a campaign targeting my United Healthcare Medicare (Dis)Advantage Overlords. The goal was to get them to actually pay for my infusion to treat Complex Regional Pain Syndrome and Small Fiber Neuropathy. These infusions keep me from being...

A Statement Regarding Kowalski v Johns Hopkins ACH

There’s nothing anyone can say about the horrors of what has been revealed in the court case of Kowalski v Johns Hopkins All Children’s Hospital. I live in New Hampshire and I’m seriously shocked at the attitudes and backwoods medicine in Florida. I...

Care Over Cost National Rally 2023

#CareOverCost National Campaign #CRPS #RSD Infusions and Medical Care. Hon. Jenn Coffey, NREMTI Ret. Complex Regional Pain Syndrome / Small Fiber Neuropathy Battle for access to life saving treatments. #RSD #Raredisease #Smallfiberneuropathy...

Recommended Reading – Raising Male Breast Cancer Awareness

The Pink Unicorns Of Male Breast Cancer Alan Herbert is a West London born, ex forces, motorcycle riding, all action grandfather who now lives in The Netherlands with his family. In 2012, he was diagnosed with breast cancer. Alan vividly describes his battle with...

So I did a thing ~ Wish me luck!

I entered the Rare Artist Contest. Submissions closed today. “It’s Complicated” Acrylic on Stretch Canvas Artist Statement: “It’s Complicated” being rare. On the surface, I “appear” fine. There have been those who say,...

A Keyword Gave Me an Instant Denial

August 28, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. On the occasion of marking Medicare’s 58th birthday, I teamed up with an organization called “Be A Hero.” An organization that believes we should be able to access care without selling our lives away....

Everyone Deserves Access to the Best

July 31, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. An activist’s dream. That’s how I would describe the trip back to Washington D.C. for the “People’s Action Organizing Revival: a call to revitalize the movement for social justice by strengthening...