There’s nothing anyone can say about the horrors of what has been revealed in the court case of Kowalski v Johns Hopkins All Children’s Hospital. I live in New Hampshire and I’m seriously shocked at the attitudes and backwoods medicine in Florida. I...
#CareOverCost National Campaign #CRPS #RSD Infusions and Medical Care. Hon. Jenn Coffey, NREMTI Ret. Complex Regional Pain Syndrome / Small Fiber Neuropathy Battle for access to life saving treatments. #RSD #Raredisease #Smallfiberneuropathy...
The Pink Unicorns Of Male Breast Cancer Alan Herbert is a West London born, ex forces, motorcycle riding, all action grandfather who now lives in The Netherlands with his family. In 2012, he was diagnosed with breast cancer. Alan vividly describes his battle with...
I entered the Rare Artist Contest. Submissions closed today. “It’s Complicated” Acrylic on Stretch Canvas Artist Statement: “It’s Complicated” being rare. On the surface, I “appear” fine. There have been those who say,...
August 28, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. On the occasion of marking Medicare’s 58th birthday, I teamed up with an organization called “Be A Hero.” An organization that believes we should be able to access care without selling our lives away....
The Retiree ADVOCATE PSARA EDUCATION FUND Vol XXXVIII, No 9 September 2023 The Monthly Publication of “Uniting Generations for a Secure Future” A Personal Story About a Medicare Advantage Denial By Hon. Jenn Coffey Greetings, PSARA members. I’m a new member from New...
July 31, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. An activist’s dream. That’s how I would describe the trip back to Washington D.C. for the “People’s Action Organizing Revival: a call to revitalize the movement for social justice by strengthening...
Monday, July 31 at 11 AM – Veterans Memorial Park, 723 Elm Street, Manchester, NH Care Force One Rolled into Manchester as it Travels Across 16+ States, Making Over 30 Stops and Covering Nearly 8,000 Miles Protect Our Care’s “Lower Costs, Better Care” Bus Tour...
A joint press with Be a Hero Fund, People’s Action, NYC Organization of Public Service Retirees, Inc. and more occurred July 25th on Capitol Hill in Washington, D.C. at 4:30 PM Eastern, location Capitol Hill Triangle. Be a Hero Fund believes “here in the...
July 3, 2023 Written by Hon. Jenn Coffey for the RSDSA blog. I want to share with you the work that I am doing and ask you for your help. People with CRPS know all too well the pain of being denied access to medical treatments and medications that could improve our...