From MSNBC a Tribute to Ady. Healthcare activist Ady Barkan died at the age of 39 after being diagnosed with ALS in 2016. We pay tribute to a man who made it his mission to improve the American healthcare system. Nov. 3, 2023 Be A Hero takes on the impossible fights....
As Seen on For Grace It’s complicated, my story… At the age of 42, I was diagnosed with breast cancer. The breast cancer I beat, but the surgeries created a new set of problems. Within one year, I had three surgeries trying to undo what had been done. I had walked...
In April 2023, we launched a campaign targeting my United Healthcare Medicare (Dis)Advantage Overlords. The goal was to get them to actually pay for my infusion to treat Complex Regional Pain Syndrome and Small Fiber Neuropathy. These infusions keep me from being...
There’s nothing anyone can say about the horrors of what has been revealed in the court case of Kowalski v Johns Hopkins All Children’s Hospital. I live in New Hampshire and I’m seriously shocked at the attitudes and backwoods medicine in Florida. I...
#CareOverCost National Campaign #CRPS #RSD Infusions and Medical Care. Hon. Jenn Coffey, NREMTI Ret. Complex Regional Pain Syndrome / Small Fiber Neuropathy Battle for access to life saving treatments. #RSD #Raredisease #Smallfiberneuropathy...
