Fires don’t stop as the flesh falls away. Nothing left but burnt chards not moving. Nothing just bone and yet still fighting. Never stopping and not ever giving up. Never again will the words and thoughts of others be what defines. Finding that definition within and only to be written but in the heart. No […]

(View this article on “The Mighty” here.) In a previous article, I talked about how simple box breathing is, and how it helps me achieve a meditative state. No one says that you have to sit on a pillow and make “om” sounds in order to meditate. Meditation can be done most anywhere and with […]

I’m having a steroid flush, burning, sweating, hot nausea ugh. Might last one day might last a few. Guess I have to wait and see how much more of an asshole my body feels like being. Today’s course was comprised of a left lumbar spinal steroid infusion under fluoroscope to L4, L5, and S1. That […]

I love these! It’s almost like getting to eat “healthy” fudge. At least to me, lol. The great thing about these is they are healthy, heart-healthy, filling, and a great energy boost. The badass energy balls make a good grab-and-go snack. I come across so many recipes for these. I took my favorite ones and […]

February 18, 2022 When I was a little girl I kept a diary. I honestly thought if I wrote down the terrible things that they would be “trapped” inside those pages. Locked behind the little key I had. Diaries were very common back in the ’70s and ’80s. None of mine survived to be placed […]

New Year New Beginnings This year I hope to blog more, share big, and have fun with paint and food. Tag along with me as I share my life with Complex Regional Pain Syndrome, some missing nerves with small fiber, and a heck of a lot of awesome Jewish sweet challah bread. Crazy creations may […]

A friend once asked me to share how “personal courage” shaped my medical outcomes, wanting to know more about how I do it. How is it that I walk when I shouldn’t be able to? How is it that I see when I nearly lost my sight? How is it that I seem to shape […]

I never knew cancer could have so many cousins. That the medication to prevent a third cancer round could take my sight. Out of fear came acceptance and determination, and that made me free in my art, as I paint the way the world appears when my eyes are being jerks. Colors I never felt […]

Published in The Mighty August 7, 2021 The media loves to hype up a television series and as of late, they have destroyed public perception of CRPS (complex regional pain syndrome), as well as the experimental treatment of ketamine infusions. One would hope for a rare disease to be represented respectfully. Unfortunately, that often doesn’t […]

Published on The Mighty June 8, 2021 Ketamine infusions have been in the news for both good and bad reasons. All too often the stories involve people who have vastly different lives than most. They have access to or can afford the best in medical care. They don’t know what it is like to wait […]