by Jenn | Nov 5, 2023
From MSNBC a Tribute to Ady. Healthcare activist Ady Barkan died at the age of 39 after being diagnosed with ALS in 2016. We pay tribute to a man who made it his mission to improve the American healthcare system. Nov. 3, 2023 Be A Hero takes on the impossible fights....
by Jenn | Nov 1, 2023
As Seen on For Grace It’s complicated, my story… At the age of 42, I was diagnosed with breast cancer. The breast cancer I beat, but the surgeries created a new set of problems. Within one year, I had three surgeries trying to undo what had been done. I had walked...
by Jenn | Oct 31, 2023
In April 2023, we launched a campaign targeting my United Healthcare Medicare (Dis)Advantage Overlords. The goal was to get them to actually pay for my infusion to treat Complex Regional Pain Syndrome and Small Fiber Neuropathy. These infusions keep me from being...
by Jenn | Oct 15, 2023
There’s nothing anyone can say about the horrors of what has been revealed in the court case of Kowalski v Johns Hopkins All Children’s Hospital. I live in New Hampshire and I’m seriously shocked at the attitudes and backwoods medicine in Florida. I...
by Jenn | Oct 15, 2023
#CareOverCost National Campaign #CRPS #RSD Infusions and Medical Care. Hon. Jenn Coffey, NREMTI Ret. Complex Regional Pain Syndrome / Small Fiber Neuropathy Battle for access to life saving treatments. #RSD #Raredisease #Smallfiberneuropathy...
by Jenn | Oct 15, 2023
National Campaign #CRPS #RSD Infusions and Medical Care. Hon. Jenn Coffey, NREMTI Ret. Complex Regional Pain Syndrome / Small Fiber Neuropathy Battle for access to life saving treatments. Tell Congress they’ll get our vote when we get our healthcare! Get private...
by Jenn | Oct 2, 2023
The Pink Unicorns Of Male Breast Cancer Alan Herbert is a West London born, ex forces, motorcycle riding, all action grandfather who now lives in The Netherlands with his family. In 2012, he was diagnosed with breast cancer. Alan vividly describes his battle with...
by Jenn | Aug 31, 2023
I entered the Rare Artist Contest. Submissions closed today. “It’s Complicated” Acrylic on Stretch Canvas Artist Statement: “It’s Complicated” being rare. On the surface, I “appear” fine. There have been those who say,...
by Jenn | Aug 30, 2023
August 28, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. On the occasion of marking Medicare’s 58th birthday, I teamed up with an organization called “Be A Hero.” An organization that believes we should be able to access care without selling our lives away....
by Jenn | Aug 24, 2023
The Retiree ADVOCATE PSARA EDUCATION FUND Vol XXXVIII, No 9 September 2023 The Monthly Publication of “Uniting Generations for a Secure Future” A Personal Story About a Medicare Advantage Denial By Hon. Jenn Coffey Greetings, PSARA members. I’m a new member from New...
