From MSNBC a Tribute to Ady. Healthcare activist Ady Barkan died at the age of 39 after being diagnosed with ALS in 2016. We pay tribute to a man who made it his mission to improve the American healthcare system. Nov. 3, 2023 Be A Hero takes on the impossible fights....
In April 2023, we launched a campaign targeting my United Healthcare Medicare (Dis)Advantage Overlords. The goal was to get them to actually pay for my infusion to treat Complex Regional Pain Syndrome and Small Fiber Neuropathy. These infusions keep me from being...
There’s nothing anyone can say about the horrors of what has been revealed in the court case of Kowalski v Johns Hopkins All Children’s Hospital. I live in New Hampshire and I’m seriously shocked at the attitudes and backwoods medicine in Florida. I...
#CareOverCost National Campaign #CRPS #RSD Infusions and Medical Care. Hon. Jenn Coffey, NREMTI Ret. Complex Regional Pain Syndrome / Small Fiber Neuropathy Battle for access to life saving treatments. #RSD #Raredisease #Smallfiberneuropathy...
The Pink Unicorns Of Male Breast Cancer Alan Herbert is a West London born, ex forces, motorcycle riding, all action grandfather who now lives in The Netherlands with his family. In 2012, he was diagnosed with breast cancer. Alan vividly describes his battle with...
I entered the Rare Artist Contest. Submissions closed today. “It’s Complicated” Acrylic on Stretch Canvas Artist Statement: “It’s Complicated” being rare. On the surface, I “appear” fine. There have been those who say,...
August 28, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. On the occasion of marking Medicare’s 58th birthday, I teamed up with an organization called “Be A Hero.” An organization that believes we should be able to access care without selling our lives away....
The Retiree ADVOCATE PSARA EDUCATION FUND Vol XXXVIII, No 9 September 2023 The Monthly Publication of “Uniting Generations for a Secure Future” A Personal Story About a Medicare Advantage Denial By Hon. Jenn Coffey Greetings, PSARA members. I’m a new member from New...
July 31, 2023 Written by the Hon. Jenn Coffey for the RSDSA blog. An activist’s dream. That’s how I would describe the trip back to Washington D.C. for the “People’s Action Organizing Revival: a call to revitalize the movement for social justice by strengthening...
Monday, July 31 at 11 AM – Veterans Memorial Park, 723 Elm Street, Manchester, NH Care Force One Rolled into Manchester as it Travels Across 16+ States, Making Over 30 Stops and Covering Nearly 8,000 Miles Protect Our Care’s “Lower Costs, Better Care” Bus Tour...
