by Jenn | Sep 21, 2026
by Jenn | Sep 20, 2026
Jenn C. from Manchester, NH, started experiencing “snow” in her vision. After visiting her eye doctor, she discovered the medication she was taking to prevent a recurrence of breast cancer wasn’t being processed by her body correctly. The result was...
by Jenn | Sep 19, 2026
Traveling to Washington, D.C. with Popular Democracy and Ali, a fellow CRPS Warrior, was both an inspiring privilege and a powerful physical reminder of why we do this work. As a rare disease advocate, former state representative, and disabled person, traveling takes...
by Jenn | Aug 24, 2026
Greetings, I do not enjoy writing this, but the truth must be said, and I will not be painted as some villain. I did have to remove RAD from an event for very valid, sad reasons. As a result, ending my support as well. I invited RAD to sponsor an event; that was all I...
by Jenn | Aug 19, 2026
If you want to know what we are up against and why what we do is so important, just review these articles: UnitedHealth joins Amazon among the world’s revenue giants 31 top healthcare organizations on the Fortune Global 500 UnitedHealthcare is the 4th-largest company...
