by Jenn | Sep 30, 2026
Click here to learn more Click HERE to RSVP! Click here to learn more about The Patients Union, join for free today and be a founding member of our national...
by Jenn | Sep 25, 2026
I swear I mail in my claims for reimbursement and they disappear when they hit Humana’s P.O. Box in Kentucky. Another reason to hate that state. I swear my claims endup with santa’s letters. How do you fight a claim they refuse to admit exists no matter...
by Jenn | Sep 21, 2026
by Jenn | Sep 20, 2026
Jenn C. from Manchester, NH, started experiencing “snow” in her vision. After visiting her eye doctor, she discovered the medication she was taking to prevent a recurrence of breast cancer wasn’t being processed by her body correctly. The result was...
by Jenn | Sep 19, 2026
Traveling to Washington, D.C. with Popular Democracy and Ali, a fellow CRPS Warrior, was both an inspiring privilege and a powerful physical reminder of why we do this work. As a rare disease advocate, former state representative, and disabled person, traveling takes...